cleolinda: (galadriel)
[personal profile] cleolinda
Okay. I was so worried and upset over the weekend that I didn't do a very good job of laying out the actual problem for which we are raising the money (again). And those of you who have asked for verification are absolutely in the right, as it is all too easy to get scammed on the internet. I didn't think to lay it out for y'all because the donation link took you to Christina's site, where there's a big ol' link on the sidebar to "Verification." There are also pictures of Christina after surgery on the main page.

A comment Christina originally posted to someone else:
Just to update you. The controversy did help raise some money that helped me to get care over the last four months. On the down side my husband received his pink slip today and he has lost his job to outsourcing. With it he is losing his insurance. Now I'm really in a bad situation!

On top of the cancer I was in the process of having gastric bypass done to save my life (as ordered by the doctors at Mayo Clinic because of the 19 other health problems I have inluding just diagnosed pre-diabetes which would be cured with this surgery) to help me get out of bed and on my feet again. I am to the point I was to meet with the surgeon on March 25 and set the surgery date. But without insurance, no bypass surgery and no insurance for the cancer tests and treatment. Because the COBRA insurance will cost $1250.03 a month and that is almost what my hubby will get in unemployment we can't afford the insurance.

[...]

Without this surgery the doctors are saying I will have a heart attack or stroke not If but When, and that is not even taking into consideration the expensive tests I need for the cancer care.
This is what I read just before I ran over here and said, "Y'all, Christina is in trouble and I'm scared."

Christina went back into the hospital shortly after she posted that comment. A fresh email from Jillian, Christina's daughter:
Hi Cleo,

Could you include with a future post about the 4Christina stuff?

1. Mum's cancer is called "Acinic Cell Carcinoma." (Here is a site for it, http://www.aciniccell.org/)

2. She is not asking for money to pay for a Gastric Bypass surgery, it is to continue getting tests to make sure the cancer has not returned. Besides getting medicines that control her conditions. (There is no remission with this type of cancer, just dormant times. The person who runs the site linked above, has been dealing with this cancer for over 20+ years and has to my knowledge, 4 active periods with the cancer.)

3. She does not get many medical things done locally because she has had many run-ins with bad doctors. (Including before she found out about the cancer, one local doctor told her the lump was nothing and to go home and suck on lemon drops.) Which is also why she is scared of losing the insurance.

4. She is not dying [in the hospital at this moment].

5. She has 19 medical conditions, Mayo Clinic has them on file. These all interact with each other and sometimes cause the other conditions to flare up.
Here's a link to a news story about Christina's husband losing his job that mentions her ongoing illness, by the way.

The reason I'm posting this is because most people discussing the issue agree that there is legitimate illness going on here. It's been well-documented, and there is no question of that. What people have been asking is whether the money is needed for the cancer or for the other problems. My personal answer is that I don't care. The problems are real, the cancer wiped out their finances and possibly caused or contributed to other problems, and whether it comes back or not, the need is still there. I'm not asking you to help out because Christina is Teh Poster Girl For Teh Cancer; I'm asking you to help because someone is in great need.

This doesn't seem to be good enough for some observers.

I'm not going to link to the wank because I don't want to fan the flames, but suffice it to say, it's literally the ugliest thing I've ever seen in the Harry Potter fandom, and that's saying a lot. However, to give you an idea, because I don't think it's fair to mention it and then keep you in the dark, here's an example of the kind of things people were saying:
Honestly, I have zero sympathy for this person anyway.

We're all dying[,] bitch. It's enevitable [sic]. And sorry, just because she claims to have this SOOPER RARE OMG cancer does not mean her cancer and illness is OMG BEING IGNORED by research--I can guarantee you if they suddenly solve the mystery of breast cancer and discover its cure, then that cure will translate to other cancers as well and voila--everyone benefits. What this person is asking for is HELP IN PAYING HER BILLS.

To which I must say, get a freaking job or contact your local church or government or something. Maybe get rid of that livejournal paid account. Lots of people have bills and lots of people have medical problems. And even more people--actually, *all* of us--will die. Get over it.
In fact, a very angry anonymouse over at Fandom Wank (which has largely been supporting Christina) actually called to investigate 4christina.org (I know, y'all) after these trolls got involved, got the name of the site wrong, and started claiming all kinds of things. What Angermouse (who's on our side) discovered:
The first lady I was talking to said that no, it wasn't a registered charity. When I asked if there had been any complaints about it, I was put through to another guy (he answered with: 'attorney general's office') who gave me more info.

Some facts:

They have no knowledge of any complaints about http://www.4Christina.org (you even got the name wrong!)

http://www.4christina.org wouldn't qualify for charitable status because the money collected would have to benefit more than one person and not just Christina herself. He said that people collect money to help out friends in need all the time and there's nothing wrong with it. They just don't qualify for the tax breaks associated with charitable status.
Personally, I am satisfied that there is illness and that there is need. If you would prefer to give to a large organization for research instead of directly to one person, I completely understand.

Here's my final word on it: I wanted to bring this problem to the attention to people who could afford to help and on top of that wanted to. There are a lot of people and a lot of causes that need your time and your resources. I am completely unoffended if you do not want to help, or can't afford to, or are too young to. Please take care of yourself before you try to help someone else. All I'm doing with the "will parody for donations" thing is trying to find 1) an incentive for you, 2) a specific window of time in which to donate, and 3) a way to thank you for doing so.

I don't want to twist your arm, I don't feel entitled to coerce you, and I am paying absolutely no attention to the names of the people who do and do not donate. This may surprise you, but I can't even remember what I had for dinner last night. It's in one ear and out the other, so to speak. And even when I do read the names, I am seriously not attaching any moral value to your donating or not donating. So when people go out of their way to tell me that they didn't, I'm kind of like... why are you telling me? It's not like I'd noticed who did and who didn't. (Although God bless y'all who commented and said, "I can't give anything, but I'm keeping Christina in my prayers.") So, in conclusion: no guilt, no coercion, no problem.

As for this entry? I'm a little conflicted here, because I think it's within your rights to ask honest, well-meaning follow-up questions. But I swear to God, my blood pressure cannot handle a flame war in this journal. If you so much as look at another commenter cross-eyed, I will ban you from this journal so fast your head will spin. If you want to get your Geraldo Rivera on, fine--go do it in your own journal. And if you dare go over to Christina's journal and bitch at her there, as has already happened, I will shun you and everything you ever loved from the face of this planet. And I know that most of my regulars wouldn't do that--but if you see someone else being vile, don't engage them, either. If people are going to be asshats, you just let them do that and let them embarrass themselves. This is the same advice I have given to Jillian herself, because she doesn't need to be dealing with these people right now. As for me, this journal is Switzerland--NEUTRAL--and if you want to be welcome here, you'll remember that. I have enough friendly anonymice that I'm not going to ban or screen anonymous comments... for now. SO BEHAVE YOURSELVES, PEOPLE.


Thank you so much to everyone who could and has given already. Christina and Jillian appreciate it so, so much.


My original entry.

How much PayPal takes out of your donation.

Log your donation here, for parody fundraiser purposes. If you don't have a LJ account and/or are commenting anonymously, just mention it in the comments. Otherwise, please use the poll.
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Date: 2005-03-15 06:11 pm (UTC)
From: [identity profile] much-reality.livejournal.com
This whole thing has been the single most depressing thing I've ever seen online. And that's quite a negative achievement.

Date: 2005-03-15 06:19 pm (UTC)
From: [identity profile] cleolinda.livejournal.com
I know, man. On the upside, I'm hearing from people who said it's the ugliness that convinced them to get involved.

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Date: 2005-03-15 06:20 pm (UTC)
From: [identity profile] all-ephemera.livejournal.com
I love you. :)

Date: 2005-03-15 06:24 pm (UTC)
From: [identity profile] shubassdk.livejournal.com
I don't care that it's not a registered charity. Like you said, "there is illness and that there is need". They need money and I have money, therefore I will give them some of mine.

Have donated $10.

Date: 2005-03-15 06:25 pm (UTC)
From: [identity profile] cleolinda.livejournal.com
Thank you. : )

Date: 2005-03-15 06:25 pm (UTC)
From: [identity profile] starr234.livejournal.com
I had a whole long comment typed out agreeing with you point by point, but I think I can sum it up by just saying "WORD" and leaving it at that.

Date: 2005-03-15 06:26 pm (UTC)
From: [identity profile] cleolinda.livejournal.com
Exactly. Save your energy. (And then give it to me.) : )

Date: 2005-03-15 06:25 pm (UTC)
From: [identity profile] carlanime.livejournal.com
What people have been asking is whether the money is needed for the cancer or for the other problems. My personal answer is that I don't care.

I don't really know you, but I like you. :)
Thank you for being one of the sane, generous, non-raging people of the internet.

Date: 2005-03-15 06:27 pm (UTC)
From: [identity profile] cleolinda.livejournal.com
I don't really know you, but I like you. :)

Kind of the refrain on FW right now, isn't it. ; )

Thank you for being one of the sane, generous, non-raging people

Yeah, well, if that shit comes over here, you might not have so much to thank me for.

Date: 2005-03-15 06:26 pm (UTC)
From: [identity profile] particle-person.livejournal.com
Ok, I won't squirt anybody with my metaphorical Super Soaker after all. Sigh. I was so looking forward to putting out the flames.

Date: 2005-03-15 06:27 pm (UTC)
From: [identity profile] cleolinda.livejournal.com
S'okay. You can be my enforcer.

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Date: 2005-03-15 06:26 pm (UTC)
From: [identity profile] ferelwing.livejournal.com
God that is heartbreaking! *grumble* If I didn't have doctor bills for my own kiddo I'd donate *grumble*.

Think you could try and raise some awareness for other genetic conditions? My son has a rare metabolic condition (they don't even have a name for it currently). Ironically the states don't test for even half of the conditions that can be treated. *sigh* It's really sad when parents lose a child to a condition that if caught at birth is completely treatable.

Date: 2005-03-15 06:30 pm (UTC)
From: [identity profile] cleolinda.livejournal.com
Let me post about that later--maybe tomorrow--so it doesn't get trampled by this brouhaha. Collect some stuff to tell me about it, but keep this in mind: what can I tell people that will actually do some good? Is there somewhere I can tell them to go or something they can do?

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Date: 2005-03-15 06:29 pm (UTC)
From: [identity profile] derryderrydown.livejournal.com
I think part of my horror is that she's having to struggle to find the money. I mean, I'd always assumed there was some sort of safety net in place in America so people wouldn't die just because they didn't have the money for medical treatment. But... apparently not. And that scares me.

Date: 2005-03-15 06:30 pm (UTC)
From: [identity profile] cleolinda.livejournal.com
Nope. As someone in the wank said, "In the U.S., rich people stay healthy and sick people get poor."

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Date: 2005-03-15 06:30 pm (UTC)
From: [identity profile] foresthouse.livejournal.com
It's too bad that people have been flaming all over your journal. I don't know how you deal with it sometimes - I'd just hit them all with a big wooden mallet, personally.

Of course, this is the same thing I tell my mother when she talks about the stupidity of her high school students. So...I guess it's a good thing that I am not a teacher and that my journal is not high-profile :)

P.S. I am trying to get some $$ together to donate. :)

Date: 2005-03-15 06:35 pm (UTC)
From: [identity profile] cleolinda.livejournal.com
Actually, no one's been on my journal yet--they've been on Christina's and on a LJ drama-type community. But I am afraid that they will come here now that I've brought it up. Most of my rage is at people on other journals/comms, however.

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Date: 2005-03-15 06:32 pm (UTC)
From: [identity profile] missmp.livejournal.com
Rock on with your bad self, Cleo. You are a wonderful person to be doing all this for Christina, and I am so sorry for Christina, Jillian, and you that all this ugliness has come up.

Date: 2005-03-15 06:36 pm (UTC)
From: [identity profile] melody2tds.livejournal.com
damn cleo. i told you yesterday that i ALREADY thought what you were doing by being level-headed in the face of the insanity was admirable. This is above and beyond.

*waves Swiss flag*

Date: 2005-03-15 06:37 pm (UTC)
From: [identity profile] wearejustducky.livejournal.com
Reading about this on Fandom_Wank made me so angry I ended up having to get up, turn off the computer, and go for a run to keep myself from burninating a righteous swath of fury through several peoples' journals.

I find this even more galling, because over the weekend I discovered that a woman I know in RL desperately needs a liver transplant. She's a well-known and respected professional in the Texas equestrian community, and several people have started a fundraising drive to help her - donation cans at places riders frequent, a planned silent auction ,that sort of thing. My point is that people raise money for individuals in need like this all the time. I don't understand what makes this situation so different, and what makes the responses to what to me seems like a pretty standard request for aid during a time of physical and emotional difficulty so totally virulent and over-the-top and hateful. Is it because it's the internet? Is it because it's HP fandom and they're apparently insane? I don't know. It makes me so totally and completely angry.

It makes me want to grab these people and shake them and scream in their face, "what the fucking fuck is wrong with you! Can't or don't want to help for whatever reason? Fine! Just don't fucking make the situation worse."

I think I need a Valium now. Or some shirtless Gerry pics.

Date: 2005-03-15 06:39 pm (UTC)
From: [identity profile] cleolinda.livejournal.com
I have a feeling ginmar is going to come through for us later today. Just a feeling. : )

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Date: 2005-03-15 06:38 pm (UTC)
From: [identity profile] lumaria.livejournal.com
It's sad that a person has to go through all this just to be taken care of. I gave and plan to again once I get my next paycheck.

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Date: 2005-03-15 06:46 pm (UTC)
From: [identity profile] shanisasha.livejournal.com
I'm no expert on this, but I heard that there are some programs that can pick up medical expenses if you're under a certain income level. Maybe someone has an idea about this and can pitch in?

Date: 2005-03-15 10:08 pm (UTC)
From: [identity profile] carrotcarrot.livejournal.com
Some hospitals work out a payment plan. It could mean you're stuck paying off the bills for the rest of your life though.

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Date: 2005-03-15 06:49 pm (UTC)
From: [identity profile] sunihiroku.livejournal.com
Yes, very good. Your head must be ready to 'splody by now.

That reminds me of my grandma...my mom was telling her about the impoverished family that had three children die in a fire, and how the whole town is chipping in to give them a proper funeral, and my grandmother said, "Why on earth are they doing that? Don't those people even have insurance?" To which my mom replied, "What?? They barely had enough for groceries! They lost three children!"
"Oh, stop being such a bleeding heart!" snaps Grandma.
Mom: *hangs up*

Date: 2005-03-15 06:54 pm (UTC)
From: [identity profile] http://users.livejournal.com/lorien__/
bloody hell...

*hugs to you lauren*

will behave... will be a good girl... *innocent look* cause i like it here...

can't give anything at the moment... as my personal life is eum well shite right now... but once that is settled i will donate again ;) with pleasure... as much as i can spare... (okay that wont be much to most people but it will be a lot for me and it will be given freely and with lots of good vibes and love attached to it)

L.
keep going lauren... there should be more people like you...
*hugsies*

Date: 2005-03-15 06:55 pm (UTC)
From: [identity profile] stardustmajick.livejournal.com
How does the it work when you order off of Amazon with the 4Christina link? I just ordered the Harry Potter boxset ($27.50), been meaning to read those books and it seemed fitting enough, but if they won't get any money from it I'll go and donate $5 (or, you know, the equivalent so they'll get $5) through paypal. I consider myself to be a blessed individual... I've never been sick, poor, hungry or even had any bones broken. It's the least I can do to help a person in need.

Date: 2005-03-15 08:15 pm (UTC)
From: [identity profile] darkesta.livejournal.com
They get 5 or 10 percent per item.

If it comes to a certain amount ($50? $100? one of those), the get a check. Below that, they get an Amazon gift certificate.

Personally, I just gave through paypal. That way, I know the money goes directly where it's needed.

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Date: 2005-03-15 07:00 pm (UTC)
From: [identity profile] lizzyrose89.livejournal.com
But I swear to God, my blood pressure cannot handle a flame war in this journal. If you so much as look at another commenter cross-eyed, I will ban you from this journal so fast your head will spin. If you want to get your Geraldo Rivera on, fine--go do it in your own journal. And if you dare go over to Christina's journal and bitch at her there, as has already happened, I will shun you and everything you ever loved from the face of this planet.

You, my dear, would make an excellent teacher.

Also, WORD. (I adore that word [heh]! So cool, but if I ever used it in RL I know all my mates'd give me their very best 'wtf?' looks.)

P.S. Who's Gerald Rivers?

Date: 2005-03-15 08:08 pm (UTC)
From: [identity profile] cleolinda.livejournal.com
Geraldo Rivera is a tabloid journalist--now at CNN? I can't remember--who's famous for his aggressive expose reporting style. He frequently makes an ass of himself. What I meant by that was, if you want to get all investigative reporter on the the thing, don't do it here, or I will lay down the pain.

You know the line in HP&POA/15M where Snape is all, "SIT DOWN AND SHUT THE GODDAMN HELL UP"? That's actually an inside joke--I used to say that I could never be a teacher, because that would be the first thing out of my mouth.

*giggles*

From: [identity profile] lizzyrose89.livejournal.com - Date: 2005-03-15 08:43 pm (UTC) - Expand

Re: *giggles*

From: [identity profile] cleolinda.livejournal.com - Date: 2005-03-15 08:48 pm (UTC) - Expand

Re: *giggles*

From: [identity profile] lizzyrose89.livejournal.com - Date: 2005-03-15 08:57 pm (UTC) - Expand

Re: *giggles*

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My friend's user icon

From: [identity profile] much-reality.livejournal.com - Date: 2005-03-16 04:38 am (UTC) - Expand

Re: My friend's user icon

From: [identity profile] cleolinda.livejournal.com - Date: 2005-03-16 04:48 am (UTC) - Expand

Re: My friend's user icon

From: [identity profile] much-reality.livejournal.com - Date: 2005-03-16 05:00 am (UTC) - Expand

Re: My friend's user icon

From: [identity profile] cleolinda.livejournal.com - Date: 2005-03-16 05:28 am (UTC) - Expand

Date: 2005-03-15 07:17 pm (UTC)
From: [identity profile] luna-k.livejournal.com
Holy hell, I didn't know about the being-layed-off part. Watching that video clip, I actually started crying a little.

People that are doubting and flaming you, Christina and JournalFen need to shut the fuck up and die. RIGHT NOW.

Date: 2005-03-15 08:15 pm (UTC)
From: [identity profile] cleolinda.livejournal.com
Zorrorojo, the OWNER of JournalFen, said her piece late on page 3 of the wank, and it was GORGEOUS.

I'm actually not getting flamed (so far). It's more people who I think started defending one person, and in trying to do that they decided that casting doubt on Christina was the best way to do that. Never mind that it was originally possible to defend both sides, call it a misunderstanding/difference of opinion, and call it a day.

Date: 2005-03-15 07:19 pm (UTC)
From: [identity profile] hybridutensil.livejournal.com
I'm asking you to help because someone is in great need.

Dude, word. WORD. Wordy McWordenstein O'Wordaghan of Wordville.

I have such insane love for you right now you don't even know. Forgive the oddness of that, being that you don't even know me. Regardless, my love still stands :)

Date: 2005-03-15 08:10 pm (UTC)
From: [identity profile] cleolinda.livejournal.com
Bless. : )

Date: 2005-03-15 07:23 pm (UTC)
From: [identity profile] toxictattoo.livejournal.com
You rock. Thanks for saying this.

Date: 2005-03-15 07:29 pm (UTC)
From: [identity profile] koritsimou.livejournal.com
I know I shouldn't, but but there's the rubbernecky part of me that wants to find where this flamewar has been going on and read it all, just see the the asshattery in progress.

Date: 2005-03-16 04:24 am (UTC)
From: [identity profile] much-reality.livejournal.com
Trust me, you really don't. I'm a Fandom Wank regular, and I mostly find flamewars hugely funny. Online stuff is so trivial, and people usually just need to take a deep breath and relax. But people piling on to lecture a very ill woman on how presumptuous and rude she is for wanting to live, and be in less acute pain, and how she should go away and be quiet and stop bothering healthier, wealthier folk?

I felt really, really sick.

(no subject)

From: [identity profile] bishounenhuntrs.livejournal.com - Date: 2005-03-21 03:31 am (UTC) - Expand

Date: 2005-03-15 07:30 pm (UTC)
From: [identity profile] dietcokebreak.livejournal.com
It is things like this that really make you count your blessings, eh?

My heart goes out to Christina and her family. Like they need any more crap, right?

Date: 2005-03-15 07:32 pm (UTC)
From: [identity profile] ex-krazycat651.livejournal.com
This whole thing has been beyond ugly.
I can't believe some things that have been said.
I understand how people are careful about giving their money to strangers, that's understandable. But this venom that we're seeing from people? It disgusts me.

On the other hand, hopefully this has gotten a lot more people involved. I know I'm going to donate, and I didn't before.

Date: 2005-03-15 07:33 pm (UTC)
From: [identity profile] adoresixtyfour.livejournal.com
I may not have a lot of cash--until I win the lottery or find some fool...er, generous soul starts paying me for my movie reviews--but I'm healthy and employed, so I made a donation. Not as much as I'd like to give, but I hope it helps.
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